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HEN Stories
HEN Stories
HEN impacts on other aspects of people's lives including, body image, self esteem, independence social interactions and relationships. Patient focus groups were conducted to identify the views of HEN patients and carers regarding their experiences of HEN and HEN services in NSW.
Felicity is now 2 years old. At 2 months old she was not feeding well and was not gaining weight. She was labelled as "Failure to thrive"... hard for any mother to take. After months of small hospital stays and day visits for tests, we had no answers at all. Felicity continued to lose weight and became skin and bone. She was not able to feed normally, so at 7 months old a nasogastric feeding tube was inserted from her nose into her stomach. After a short stay at hospital to learn how to feed her with the tube, we went home.
