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Transition Care - Helping young people move successfully from child to adult health services

What is Transition?

As a child becomes an adult they outgrow the expertise of children's (paediatric) health services and need to find an adult health provider that suits them.

When health professionals in the children's service start discussing "transition" they are talking about getting ready to identify and prepare a young person for adult health services.

Transition takes time. People should start to bring up the topic of transition when a client become a teenager. If this doesns't happen, parents and young people can ask their health team some questions about it.

To find out more about transition and the transition care program view our factsheets.

As children mature into young adults, they outgrow the expertise of children's services (paediatrics) and need to find an adult health service that suits them. The GMCT Transition Care Network aims to improved continuity of care for young people with chronic health as they move from children's (paediatric) to adult health services.

A Network Manager leads a team of three Transition Coordinators who are based at John Hunter Hospital in Newcastle, Royal Prince Alfred Hospital, and Westmead Hospital. These hospitals are affiliated with three children's hospitals (John Hunter Children's Hospital, Sydney Children's Hospital at Randwick and Children's Hospital Westmead). The Program extends across all Area Health Services in NSW.

To find out more about transition and the transition care program click on the pdf fact sheets highlighted below.

Help With Transition

The GMCT Transition Care program is currently developing a range of general tools to help young people, their parents and their health care professionals prepare for transition, these include;

Transition Care Forum held at Northern Sydney Education Centre, 17 February 2009

A half day transition forum titled 'Different Countries, Same Challenges' was held at Northern Sydney Education Centre on Tuesday 17 February. Guest speakers included Helen Healy, Director of the Lifeskills and Wellness Institute, Bloorview Kids Rehab in  Toronto Canada and Joanne Maxwell, Lifespan Project Coordinator, Toronto Rehabilitation Institute.  The forum was well attended by over eighty professionals from a variety of backgrounds including paediatric and adult clinicians, health planners and managers. Links to the presentations are provided below.

Professor Kate Steinbeck provided an overview of the achievements of the GMCT Transition Network including the workforce project, development of models of care and an overview of current working groups. Kate referred to Transition as the most important of all clinical handovers and stressed the need for education and research that is interdisciplinary, connected with professional training organizations, involves Government Departments other than Health and Non Government Organisations who already are involved with youth.

Guest speakers Helen Healy and Joanne Maxwell, provided an overview of the Lifespan transition program developed at Bloorview Kids Rehab in Canada. Their paper titled 'Across The Lifespan - The Canadian Experience Of Developing A Lifespan Model Of Care' outlined the Growing up Ready model and listed a range of resources including the Timetable for Growing Up and Checklist for Developing the skills for Growing Up.

Kirrily Rodgers Acting Nurse Manager Executive, Prince of Wales Hospital, SESIAHSgave a paper titled 'Transitions in Care: One campus - two worlds'.  Kirrily outlined key initiatives to improve processes for young people and their families transitioning from Sydney Children's Hospital (SCH) to the Prince of Wales Hospital adult service. They include formation of a Transition Care Working Group, development of an adolescent admission form (nursing) adolescent information brochure, Transition Care Guidelines, road map for clinic attendances, flow chart for planned and un-planned admissions, Medical Management Plan, formation of a SESIAHS Transition Care Committee and SCH School ward visits for adolescent in-patients.

Paul Isaac, SWAHS Aged and Chronic Care Network Operations Manager outlined priorities for the newly formed Sydney West Area Health Service Transition Working Group. Clinicians from a range of services such as cerebral palsy, intellectual disability, complex orthopaedic and rare genetic diseases have been invited to present to the Committee on issues around transition of young people moving from the Children's Hospital at Westmead to adult health services in SWAHS.

Dr Helen Somerville, Coordinator of the Disability Clinic at the Children's Hospital at Westmead, provided insights into the special needs of young people with intellectual disability (ID) transitioning to adult health services. These young people often have a range of co-morbid medical conditions such as epilepsy, orthopedic, vision/hearing and gastroenterological problems that require a multidisciplinary approach. Helen presented several case studies to highlight some of the difficulties including lack of knowledge about ID by adult health providers, communication barriers and consent issues.


Reports

The GMCT Transition Care program - What's Happening Now

  • Collection of data about the number and profile of young people who are currently using paediatric services, those that are planning to move to adult services and those who have recently made the move
  • Identification of gaps in transition services
  • Collaborating with clinicians, young people and their families to determine what processes and resources are needed to bridge the gaps
  • Provision of resources for clinicians such as fact sheets and checklists which they can adapt to suit their clients' specific needs
  • Establishment of youth forums to discuss issues of concern to young people with chronic illness and disability as they approach and move through transition to adult services
  • Development of a website for quick easy access to information and support
  • Establishment of a state-wide databank to track young people as they move from child to adult services
  • Holding forums for parents and carers

What's Happening Next

  • Meeting with key stakeholders in Area Health Services to identify priorities for transition

What's Happening Later

  • Evaluation of outcomes and planning for future service needs.

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This web page is managed and authorised by Greater Metropolitan Clinical Taskforce. Last updated: 4 June, 2009