Do you, or does someone you know, experience memory loss, poor concentration or behaviour change?
Adahps provides free support to HIV+ people living in New South Wales who have, or suspect they have, cognitive impairment and related complex health issues caused by HIV.
We can help you to find out what’s happening
Some people appear to function normally while in a familiar environment.This can make a diagnosis of underlyng cognitive impairment difficult.
If you, or someone you know are experiencing any of the following it might be related to HIV (known as HIV associated neurocognitive disorder or HAND). But it could be related to something else, like depression, dementia or substance use.
If you have symptoms but don’t have a diagnosis, Adahps psychologist can help establish whether your memory loss, poor concentration or change in behaviour is normal and what might have caused it.
- Are you more forgetful than usual?
- Do you increasingly rely on memory aids like a diary, notes or lists?
- Does it take more time or effort to recall things?
- Do you walk into a room and forget what you wanted to do?
- Do you find it hard to find the words to say what you want to say?
- Do you need to concentrate a lot harder to achieve the same result?
- Do you need to re-read information to understand it?
- Do you find it hard to do more than two things at once?
- Are you easily distracted? For example, do you get side-tracked while cooking and then not return to the stove?
- Do you find it hard to follow conversations, especially when talking to more than one person?
- Are you becoming more irritable?
- Do you act more carelessly and don’t care what others think?
- Has your handwriting changed or your ability to type or perform other tasks (such as doing up buttons)?
- Do you feel more tired at the end of the day?
- Do you find it harder to go out because of your symptoms?
We can arrange a case manager to support you
Case managers work with you, your family or carer, and other services involved in your care, to help make sure you have the support you need to be as healthy and independent as possible.
A case manager can:
- advocate for you
- organise your medications and reminders
- arrange tests to monitor your memory loss or poor concentration
- support you with housing issues
- co-ordinate case conferences to identify your needs
- link you with social and support agencies
- help you manage your medical appointments
- arrange in-home and community support
A number of people can put you in touch with a case manager, including: your GP, sexual health clinic staff, ACON, Positive Life, BGF, Alzheimer’s Australia (NSW and Multicultural HIV and Hepatitis Service.
We can arrange extra support at home
There may be times when your health declines and you need extra support. During this time, Adahps can arrange for community care workers (through the Brokerage Program) to help with tasks like:
- taking your medication
- taking you to medical appointments
- social connectionsocial connections
We can connect you with medical specialists
Adahps staff work closely with specialists in HIV, neurology and psychiatry. We can assist with arranging an appointment with one of these specialists for you.
We can help with supported accommodation
There are a small number of short or medium-term places available for people with HIV living in NSW. They vary from low support to full-time care. Most places are low rent.
If you wish to apply to the HIV Supported Accommodation Program, a case manager will need to make the application on your behalf. Ask your doctor, nurse or case manager to refer you.
The eligibility criteria for each service is listed on our Services page.
We can come to you. You don’t have to travel to Sydney to see us, but if you prefer not to be seen in your home town, that’s okay too. We can also arrange an Aboriginal health worker or a culture-specific worker who understands your particular cultural concerns